Progressive Familial Intrahepatic Cholestasis (PFIC)
#PlayAPart in PFIC Research!
PFIC is a group of rare diseases, and knowledge about it is limited. But together, we can make a difference. By joining the PFIC Network Patient Registry, you can help doctors and researchers better understand the disease and improve treatments over time.
What is PFIC?
Progressive Familial Intrahepatic Cholestasis (PFIC) is an umbrella term that represents a group of rare genetic disorders that cause cholestatic liver disease and can lead to cirrhosis and end-stage liver disease.
We offer a variety of educational resources designed to help families understand this complex disease including a patient brochure translated into 19 languages and a library of webinars from PFIC experts.
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Why The PFIC Network Patient Registry Matters
A message from our Executive Director, Emily Ventura When Cedar was 15 months old, her…
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PFIC Spotlight: Support
PFIC Network was founded by PFIC families & providing direct support and disease education to patients is at the heart of our organization.If you or someone you know is affected by PFIC and could benefit from a free care package, financial assistance, or mental health support, please check out our support programs and find out how we can help! While we are US-based we support families all over the world.
