Pre-Transplant PFIC Diet & Nutrition- Panel Presentation and Discussion
2024 PFIC Family & Scientific Conference Family Session
Speakers: Dr. Ron Sokol, Elizabeth Tamayo, Sharon Munn, Dr. Laura Bull
This session focuses on nutritional management in PFIC in the pre-transplant population. In this unique panel discussion, we will explore the topic from multiple perspectives, including that of a pediatric hepatologist, a registered dietitian, and a PFIC parent. Panel participants will share their experiences and best practices in relation to dietary and vitamin management, considerations for patients who experience diarrhea as a symptom or a side effect, and how access can affect management and care. Panelists will touch briefly on PFIC1-specific considerations post-transplant, but the main focus will be on the population who has not yet experienced transplant.
This presentation was recorded at the 2024 PFIC Family & Scientific Conference, which was hosted in partnership with Cincinnati Childrens Hospital. Find out more about PFIC Network Conferences!
Click below to read more about each of our panelists!
Dr. Ron Sokol Bio
https://som.cuanschutz.edu/Profiles/Faculty/Profile/5796
Ronald J. Sokol, MD, FAASLD, Distinguished Professor of Pediatrics, received his medical degree from the University of Chicago Pritzker School of Medicine and completed pediatric residency training and Chief Residency at the University of Colorado (CU) School of Medicine. He completed fellowship training in Pediatric Gastroenterology and Nutrition at Cincinnati Children’s Hospital Medical Center and the University of Cincinnati. He has been a faculty member at University of Colorado School of Medicine since 1983. He was the founding Director of the Pediatric Liver Center at CU School of Medicine and his clinical interests are congenital, genetic and metabolic liver diseases of infants and children. His research includes basic, translational and clinical studies and trials centered on the pathogenesis, mechanisms, nutrition and treatment of childhood cholestatic liver diseases. He has been Chair of the Steering Committee, Executive Committee and Administrative Core of the multi-site NIDDK/NIH funded Childhood Liver Disease Research Network (ChiLDReN) since its inception in 2002. Currently, he is the Chief Scientific Officer, Child Health at CU Anschutz Medical Center and Children’s Hospital Colorado and Associate Dean for Child Health Research at CU SOM. He has been the Principal Investigator and Director of the Colorado Clinical and Translational Sciences Institute (funded by NCATs CTSA awards) since 2008 and the Assistant Vice Chancellor for Clinical and Translational Science at CU Denver. He was Section Head of Pediatric Gastroenterology, Hepatology, and Nutrition for 16 years until May 2022. He is past President of AASLD and NASPGHAN. He has authored over 300 peer-reviewed papers, 130 book chapters, review articles and books and is co-editor of the leading pediatric liver disease textbook, Liver Disease in Children.
Elizabeth Tamayo Bio
Elizabeth Tamayo, RD, LD, CNSC, is a registered dietitian with the Nutrition Therapy Department at Cincinnati Children’s Hospital Medical Center (CCHMC). She graduated from The Ohio State University in 2018 with a Bachelor of Science in Medical Dietetics. Elizabeth has been a practicing dietitian at CCHMC for more than five years and has been the liver and small bowel transplant dietitian in both the inpatient and outpatient settings at CCHMC for over four years. She is a Certified Nutrition Support Clinician (CNSC).
Dr. Laura Bull Bio
https://profiles.ucsf.edu/laura.bull
Laura Bull, Ph.D., RDN is a Professor in the Liver Center of the Department of Medicine at UCSF (University of California San Francisco). She is also affiliated with the UCSF Institute for Human Genetics. Her research has focused upon understanding the genetic causes and manifestations of pediatric and pregnancy-related cholestasis.
Dr. Bull also serves on the PFIC Network Medical Advisory Board.
Sharon Munn Bio
Sharon is a PFIC mother from Canada.