Connect & Support

All PFIC Network programs are in support of our mission to improve the lives of patients and families worldwide affected by PFIC and related diseases. We do this by way of providing educational materials, matching families for peer support, supporting research programs and participating in advocacy opportunities. No PFIC patient should fight this terrible disease alone.

Direct Support for PFIC Patients & Families

Financial Assistance

Apply for assistance to offset costs that may occur due to the burden of illness that PFIC can place on a family’s daily life

Care Package Program

Send a care package to a patient, parent of family member who is affected by PFIC

PFIC Support Groups

Virtual support groups and private sessions facilitated by PFIC Network.

Resources for Patients & Families

Rare & Resilient Webinar Series

This webinar series, titled “A New Perspective on Coping with Pruritus in PFIC”, addresses one of the toughest challenges facing PFIC patients: the itch.

Patient Stories

Read about the patient and family journey

Global Support Contact Directory

A list of support organizations worldwide that may provide support and resources to PFIC patients and families.

Family To Family Resources

Frequently asked questions put together FOR patients and families, BY patients and families.

PFIC Provider Outreach Materials

As a patient led organization, we understand the value of having educational resources and a point of connection upon diagnosis. View the materials included in the Patient & Provider Outreach packet here.

Community Photo Wall

The Community Photo Wall is a place to show connection, togetherness, and strength in fighting against PFIC. The photos shared here are of patients and families who suffer from this rare disease.