Register for the August Focus Group now!

 Join our community of patients, parents, clinicians, and researchers on August 20th on Zoom for a conversation about research! 

Why?   

We will be brainstorming how a specific type of research called Comparative Effectiveness Research (CER) could help address important questions like, “Which treatment is the best choice for me/my child?”. CER could also create more consistent approaches in how doctors care for PFIC, reducing the variability in treatment plans that patients experience across different centers.

We’d love to have you and to hear your valuable perspective. Join us from your desk, couch, park, or wherever you are. We look forward to seeing you there! ❤️ 

You do not need to have attended a previous focus group to join this one! Project IMPACT is our ongoing patient-centered outcomes research education project. Check out the IMPACT project webpage for more info on the project. Interested in getting involved and getting up to speed? Click the “Participate” button on the webpage to take Modules 1 ,2, & 3 today!

This project is funded through a Patient-Centered Outcomes Research Institute (PCORI) Eugene Washington Engagement Award (EASO-30455).