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Advocacy Events
Rare Disease Day
Raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers. Rare disease day brings people with all rare diseases together […]
Featured
PFIC Awareness Day
The fifth annual PFIC Awareness Day is October 5, 2023. The PFIC community around the world will hold advocacy and awareness events to honor patients, families, and caregivers. Awareness Day […]
PFIC IMPACT October Focus Group Meeting
Join us for our next Focus Group in October! Join our community of patients, parents, clinicians, and researchers on Tuesday, October 22nd at 6pm EST on Zoom for a conversation […]