Events

PFIC Parents & Caregivers Virtual Support Group

  Virtual PFIC Support Groups provide a safe and welcoming space in which patients, family members and caregivers of PFIC patients can connect with one another, share their experiences, and […]

PFIC Parents & Caregivers Virtual Support Group

  Virtual PFIC Support Groups provide a safe and welcoming space in which patients, family members and caregivers of PFIC patients can connect with one another, share their experiences, and offer […]

IMPACT Module 2 Launch Day

Module 2 of Project IMPACT is now live! Complete it today! If you are a PFIC patient (ages 14+), parent, healthcare provider, or researcher, we want YOU to participate!  IMPACT […]

Project IMPACT Focus Group Meeting

  Are you a PFIC patient, caregiver, researcher or clinician? Have you completed the Project IMPACT Module 2 learning activity? If so, we hope you can join us for a […]

Project IMPACT Focus Group Meeting

Register for the February Focus Group now! This is the last focus group meeting before we come together at the 2024 PFIC Family & Scientific Conference in April! During the […]

2024 PFIC Family & Scientific Conference

Cincinnati, Ohio Cincinnati, Ohio, USA

The PFIC Family & Scientific Conference is back! This unique conference brings together PFIC patients, families, clinicians, researchers, and industry stakeholders for an unforgettable experience of learning, sharing, and networking. […]

Project IMPACT June Focus Group Meeting

Register for the June Focus Group now!  Join our community of patients, parents, clinicians, and researchers on June 20th on Zoom for a conversation about research!  Why?    We will […]

International Alliance Meeting #1 (July 2024)

Join us July 8th for a meeting of the PFIC Network International Alliance! The International Alliance seeks to provide an international identity for PFIC organizations and the global PFIC community […]

International Alliance Meeting #2 (July 2024)

  Join us July 8th for a meeting of the PFIC Network International Alliance! The International Alliance seeks to provide an international identity for PFIC organizations and the global PFIC […]

Northeast Ohio Liver Alliance Roundtable Webinar

Our Executive Director, Emily Ventura, will be a panelist at an upcoming free webinar focusing on PFIC and Wilson's Disease hosted by the Northeast Ohio Liver Alliance. Webinar participants will […]

Project IMPACT August Focus Group Meeting

Register for the August Focus Group now!  Join our community of patients, parents, clinicians, and researchers on August 20th on Zoom for a conversation about research!  Why?    We will […]