Project IMPACT Focus Group Meeting
Register for the February Focus Group now! This is the last focus group meeting before we come together at the 2024 PFIC Family & Scientific Conference in April! During the […]
2024 PFIC Family & Scientific Conference
Cincinnati, Ohio Cincinnati, Ohio, USAThe PFIC Family & Scientific Conference is back! This unique conference brings together PFIC patients, families, clinicians, researchers, and industry stakeholders for an unforgettable experience of learning, sharing, and networking. […]
Project IMPACT June Focus Group Meeting
Register for the June Focus Group now! Join our community of patients, parents, clinicians, and researchers on June 20th on Zoom for a conversation about research! Why? We will […]
International Alliance Meeting #1 (July 2024)
Join us July 8th for a meeting of the PFIC Network International Alliance! The International Alliance seeks to provide an international identity for PFIC organizations and the global PFIC community […]
International Alliance Meeting #2 (July 2024)
Join us July 8th for a meeting of the PFIC Network International Alliance! The International Alliance seeks to provide an international identity for PFIC organizations and the global PFIC […]
Northeast Ohio Liver Alliance Roundtable Webinar
Our Executive Director, Emily Ventura, will be a panelist at an upcoming free webinar focusing on PFIC and Wilson's Disease hosted by the Northeast Ohio Liver Alliance. Webinar participants will […]
Project IMPACT August Focus Group Meeting
Register for the August Focus Group now! Join our community of patients, parents, clinicians, and researchers on August 20th on Zoom for a conversation about research! Why? We will […]
2024 PFIC Labor Day Party and Disc Golf Tournament
Join us Monday, September 2nd (Labor Day) for the official kickoff event of our PFIC Awareness Day fundraising campaign! This family-friendly event will have disc golf, corn hole and more! […]
2024 PFIC Awareness Day
Every year on October 5th, we recognize, share, and support the PFIC community in hopes for a better future for those we love. Visit our PFIC Awareness Day page to […]
Kids Club- Official Relaunch Zoom Call
We are so excited to announce the official launch of the PFIC Network’s Kids Club, a gathering space for teens and tweens living with PFIC. What is Kids Club? Kids […]
PFIC IMPACT October Focus Group Meeting
Join us for our next Focus Group in October! Join our community of patients, parents, clinicians, and researchers on Tuesday, October 22nd at 6pm EST on Zoom for a conversation […]
2025 PFIC Family & Scientific Conference
The 2025 PFIC Family & Scientific Conference will be part of the Inaugural Cholestatic Liver Disease Summit! In partnership with Alagille Syndrome Alliance (ALGSA) and Biliary Atresia Research & Education (BARE), we […]