Board Of Directors Meeting
Monthly meetings of governance and direction for our organization. These meetings are for members of the Board of Directors, all other attendees are by invite only.
FDA Listening Session
An FDA Listening Session is an opportunity for those who experience a disease (such as PFIC) as a patient of caregiver to speak to the FDA. This allows the FDA […]
Patient & Parent Advisory Board
Monthly meetings for our patient and caregiver community to share feedback, resources and present new ideas to improve the quality of life of the PFIC Community.
Global Advisory Board
Coordinated meetings from Europe to Australia to accommodate the PFIC population across the Globe. Global Advocates have the unique abilities to share needs that are specific to their own countries. […]
Community Call – June
PFIC Network seeks to provide a place for our patient and caregiver community to chat and support each other. Beginning in April, we will host a monthly zoom chat rooms […]