Rare Disease Day
Raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers. Rare disease day brings people with all rare diseases together […]
International Alliance Meetings
Formerly known as the Global Advisory Council. We invite you to join us at the International Alliance meeting. This is a space for addressing PFIC resource needs as well as […]
2022 Scientific Conference
Pittsburgh, PA 1111 Airport Boulevard, Pittsburgh, Pennsylvania, United States, 15231, Pittsburgh, PA, United StatesThe PFIC Network will be hosting a scientific meeting for researchers, patients, providers and industry partners on April 29-30 in Pittsburg, Pennsylvania. This will be a hybrid meeting with opportunities […]
Kids Club Community Call (Moved from the 21st)
Join a community call for the kids! This is a time for PFIC kids to get together and talk about anything and everything, play games, and have fun in the […]
International Alliance Meetings
Formerly known as the Global Advisory Council. We invite you to join us at the International Alliance meeting. This is a space for addressing PFIC resource needs as well as […]
Project REACH – Pakistan
Project REACH (Research, Education, Advocacy, Collaboration, and Hope), an initiative born out of the International Alliance and supported by our Health Equity grant award from Global Genes. This project consists […]
Project REACH – India
Project REACH (Research, Education, Advocacy, Collaboration, and Hope), an initiative born out of the International Alliance and supported by our Health Equity grant award from Global Genes. This project consists […]
Project REACH – Pakistan
Project REACH (Research, Education, Advocacy, Collaboration, and Hope), an initiative born out of the International Alliance and supported by our Health Equity grant award from Global Genes. This project consists […]
Mental Health Support Session
What the support group is about - The group offers a safe and welcoming space in which parents and caregivers of PFIC patients can connect with one another, share their experiences, […]
Project REACH – India
Project REACH (Research, Education, Advocacy, Collaboration, and Hope), an initiative born out of the International Alliance and supported by our Health Equity grant award from Global Genes. This project consists […]
Project REACH – Pakistan
Project REACH (Research, Education, Advocacy, Collaboration, and Hope), an initiative born out of the International Alliance and supported by our Health Equity grant award from Global Genes. This project consists […]
Grandparents & Non-Caregiver Support Group
Most of our programs focus on supporting PFIC patients and their caregivers. The impact of PFIC spreads far beyond this group, though. If you are a non-caregiving relative or close […]