Parent & Caregiver Support Group
What the support group is about – The group offers a safe and welcoming space in which parents and caregivers of PFIC patients can connect with one another, share their experiences, […]
PFIC Awareness Day
The fifth annual PFIC Awareness Day is October 5, 2023. The PFIC community around the world will hold advocacy and awareness events to honor patients, families, and caregivers. Awareness Day […]
PFIC Parents & Caregivers Virtual Support Group
Virtual PFIC Support Groups provide a safe and welcoming space in which patients, family members and caregivers of PFIC patients can connect with one another, share their experiences, and […]
PFIC Parents & Caregivers Virtual Support Group
Virtual PFIC Support Groups provide a safe and welcoming space in which patients, family members and caregivers of PFIC patients can connect with one another, share their experiences, and offer […]
IMPACT Module 2 Launch Day
Module 2 of Project IMPACT is now live! Complete it today! If you are a PFIC patient (ages 14+), parent, healthcare provider, or researcher, we want YOU to participate! IMPACT […]
Project IMPACT Focus Group Meeting
Are you a PFIC patient, caregiver, researcher or clinician? Have you completed the Project IMPACT Module 2 learning activity? If so, we hope you can join us for a […]
Project IMPACT Focus Group Meeting
Register for the February Focus Group now! This is the last focus group meeting before we come together at the 2024 PFIC Family & Scientific Conference in April! During the […]
2024 PFIC Family & Scientific Conference
Cincinnati, Ohio Cincinnati, Ohio, USAThe PFIC Family & Scientific Conference is back! This unique conference brings together PFIC patients, families, clinicians, researchers, and industry stakeholders for an unforgettable experience of learning, sharing, and networking. […]
Project IMPACT June Focus Group Meeting
Register for the June Focus Group now! Join our community of patients, parents, clinicians, and researchers on June 20th on Zoom for a conversation about research! Why? We will […]
International Alliance Meeting #1 (July 2024)
Join us July 8th for a meeting of the PFIC Network International Alliance! The International Alliance seeks to provide an international identity for PFIC organizations and the global PFIC community […]
International Alliance Meeting #2 (July 2024)
Join us July 8th for a meeting of the PFIC Network International Alliance! The International Alliance seeks to provide an international identity for PFIC organizations and the global PFIC […]
Northeast Ohio Liver Alliance Roundtable Webinar
Our Executive Director, Emily Ventura, will be a panelist at an upcoming free webinar focusing on PFIC and Wilson's Disease hosted by the Northeast Ohio Liver Alliance. Webinar participants will […]