Events

Rare Disease Day

Raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers. Rare disease day brings people with all rare diseases together […]

Recurring

International Alliance Meetings

Formerly known as the Global Advisory Council.  We invite you to join us at the International Alliance meeting.  This is a space for addressing PFIC resource needs as well as […]

2022 Scientific Conference

Pittsburgh, PA 1111 Airport Boulevard, Pittsburgh, Pennsylvania, United States, 15231, Pittsburgh, PA, United States

The PFIC Network will be hosting a scientific meeting for researchers, patients, providers and industry partners on April 29-30 in Pittsburg, Pennsylvania. This will be a hybrid meeting with opportunities […]

Kids Club Community Call (Moved from the 21st)

Join a community call for the kids! This is a time for PFIC kids to get together and talk about anything and everything, play games, and have fun in the […]

Recurring

International Alliance Meetings

Formerly known as the Global Advisory Council.  We invite you to join us at the International Alliance meeting.  This is a space for addressing PFIC resource needs as well as […]