PFIC Parents & Caregivers Virtual Support Group
Virtual PFIC Support Groups provide a safe and welcoming space in which patients, family members and caregivers of PFIC patients can connect with one another, share their experiences, and offer […]
IMPACT Module 2 Launch Day
Module 2 of Project IMPACT is now live! Complete it today! If you are a PFIC patient (ages 14+), parent, healthcare provider, or researcher, we want YOU to participate! IMPACT […]
Project IMPACT Focus Group Meeting
Are you a PFIC patient, caregiver, researcher or clinician? Have you completed the Project IMPACT Module 2 learning activity? If so, we hope you can join us for a […]
Project IMPACT Focus Group Meeting
Register for the February Focus Group now! This is the last focus group meeting before we come together at the 2024 PFIC Family & Scientific Conference in April! During the […]
2024 PFIC Family & Scientific Conference
Cincinnati, Ohio Cincinnati, Ohio, USAThe PFIC Family & Scientific Conference is back! This unique conference brings together PFIC patients, families, clinicians, researchers, and industry stakeholders for an unforgettable experience of learning, sharing, and networking. […]
Project IMPACT June Focus Group Meeting
Register for the June Focus Group now! Join our community of patients, parents, clinicians, and researchers on June 20th on Zoom for a conversation about research! Why? We will […]
International Alliance Meeting #1 (July 2024)
Join us July 8th for a meeting of the PFIC Network International Alliance! The International Alliance seeks to provide an international identity for PFIC organizations and the global PFIC community […]
International Alliance Meeting #2 (July 2024)
Join us July 8th for a meeting of the PFIC Network International Alliance! The International Alliance seeks to provide an international identity for PFIC organizations and the global PFIC […]
Northeast Ohio Liver Alliance Roundtable Webinar
Our Executive Director, Emily Ventura, will be a panelist at an upcoming free webinar focusing on PFIC and Wilson's Disease hosted by the Northeast Ohio Liver Alliance. Webinar participants will […]
Project IMPACT August Focus Group Meeting
Register for the August Focus Group now! Join our community of patients, parents, clinicians, and researchers on August 20th on Zoom for a conversation about research! Why? We will […]
2024 PFIC Labor Day Party and Disc Golf Tournament
Join us Monday, September 2nd (Labor Day) for the official kickoff event of our PFIC Awareness Day fundraising campaign! This family-friendly event will have disc golf, corn hole and more! […]
PFIC Awareness Month
PFIC Awareness Day is October 5th, but we know this disease deserves more than a day. So here at PFIC Network, the entire month of October will be PFIC Awareness […]