Events

International Alliance Meeting #2 (July 2024)

  Join us July 8th for a meeting of the PFIC Network International Alliance! The International Alliance seeks to provide an international identity for PFIC organizations and the global PFIC […]

Northeast Ohio Liver Alliance Roundtable Webinar

Our Executive Director, Emily Ventura, will be a panelist at an upcoming free webinar focusing on PFIC and Wilson's Disease hosted by the Northeast Ohio Liver Alliance. Webinar participants will […]

Project IMPACT August Focus Group Meeting

Register for the August Focus Group now!  Join our community of patients, parents, clinicians, and researchers on August 20th on Zoom for a conversation about research!  Why?    We will […]

PFIC Awareness Month

PFIC Awareness Day is October 5th, but we know this disease deserves more than a day. So here at PFIC Network, the entire month of October will be PFIC Awareness […]

2024 PFIC Awareness Day

Every year on October 5th, we recognize, share, and support the PFIC community in hopes for a better future for those we love. Visit our PFIC Awareness Day page to […]

Kids Club- Official Relaunch Zoom Call

We are so excited to announce the official launch of the PFIC Network’s Kids Club, a gathering space for teens and tweens living with PFIC. What is Kids Club? Kids […]

PFIC IMPACT October Focus Group Meeting

Join us for our next Focus Group in October! Join our community of patients, parents, clinicians, and researchers on Tuesday, October 22nd at 6pm EST on Zoom for a conversation […]

PFIC Kids Club Meeting-November 2024

Are you a teen or tween with PFIC or BRIC? Join us on November 2nd for our next Kids Club call! Register today! What is Kids Club? Kids Club is […]

2025 Cholestatic Liver Disease Summit

The 2025 PFIC Family & Scientific Conference will be part of the Inaugural Cholestatic Liver Disease Summit! In partnership with Alagille Syndrome Alliance (ALGSA) and Biliary Atresia Research & Education (BARE), we […]