Northeast Ohio Liver Alliance Roundtable Webinar
Our Executive Director, Emily Ventura, will be a panelist at an upcoming free webinar focusing on PFIC and Wilson's Disease hosted by the Northeast Ohio Liver Alliance. Webinar participants will […]
Project IMPACT August Focus Group Meeting
Register for the August Focus Group now! Join our community of patients, parents, clinicians, and researchers on August 20th on Zoom for a conversation about research! Why? We will […]
2024 PFIC Labor Day Party and Disc Golf Tournament
Join us Monday, September 2nd (Labor Day) for the official kickoff event of our PFIC Awareness Day fundraising campaign! This family-friendly event will have disc golf, corn hole and more! […]
PFIC Awareness Month
PFIC Awareness Day is October 5th, but we know this disease deserves more than a day. So here at PFIC Network, the entire month of October will be PFIC Awareness […]
2024 PFIC Awareness Day
Every year on October 5th, we recognize, share, and support the PFIC community in hopes for a better future for those we love. Visit our PFIC Awareness Day page to […]
Kids Club- Official Relaunch Zoom Call
We are so excited to announce the official launch of the PFIC Network’s Kids Club, a gathering space for teens and tweens living with PFIC. What is Kids Club? Kids […]
PFIC IMPACT October Focus Group Meeting
Join us for our next Focus Group in October! Join our community of patients, parents, clinicians, and researchers on Tuesday, October 22nd at 6pm EST on Zoom for a conversation […]
PFIC Kids Club Meeting-November 2024
Are you a teen or tween with PFIC or BRIC? Join us on November 2nd for our next Kids Club call! Register today! What is Kids Club? Kids Club is […]
December IMPACT Focus Group
Join us for our next Focus Group in December! Join our community of patients, parents, clinicians, and researchers on Wednesday, December 18th at 6pm EST on Zoom for a conversation […]
2025 Cholestatic Liver Disease Summit
The 2025 PFIC Family & Scientific Conference will be part of the Inaugural Cholestatic Liver Disease Summit! In partnership with Alagille Syndrome Alliance (ALGSA) and Biliary Atresia Research & Education (BARE), we […]