Events

Join us for our next Focus Group in December! Join our community of patients, parents, clinicians, and researchers on Wednesday, December 18th at 6pm EST on Zoom for a conversation […]

Rare Disease Day is the global movement for rare diseases, working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease. […]

The 2025 PFIC Family & Scientific Conference will be part of the Inaugural Cholestatic Liver Disease Summit! In partnership with Alagille Syndrome Alliance (ALGSA) and Biliary Atresia Research & Education (BARE), we […]