PFIC News & Events

Sometimes, we just need to write. Read blog posts from patients, caregivers, staff members as they post about their experiences as patient advocates.

We aim to bring together patients & families, clinicians, researchers and industry in order to share scientific knowledge, share patient experiences, and identify ways that we can collectively improve the lives of patients and families affected by PFIC worldwide. Learn more about the conference here.

See all events, council meetings and community initiatives on our annual calendar.

This page has links to news articles, press releases and patient and family stories that have been in the media.

In 2021, the PFIC Network had an opportunity to speak to the Food and Drug Administration (FDA) to share our stories as PFIC patients and caregivers.

Every year on October 5 our community comes together all over the world to raise awareness for PFIC related disorders.